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The stories below contain some Sheffield M.E. Group members' experiences of living with M.E. Most of these stories have featured in past issues of the Newsletter.
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Extract from the story:
I never thought that it would be relief that swept over me when I was diagnosed with a life-altering illness - but that's exactly what happened when doctors finally decided that the cause of my energy drain was the illness known as M.E. [...]
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[...] Over three years ago I came down with what I later discovered was M.E./CFS with symptoms of fatigue, brain fog, dizziness and muscle weakness. I'd just spent a year teaching abroad and travelling after finishing school and was in my first term at University. [...]
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Extract from the story:
Few conditions can surpass MCS (Multiple Chemical Sensitivity) in its complexity, but it is one that an increasing number of M.E. sufferers are facing. However, the situation doesn't have to be bleak! [...]
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- mcs.pdf - 22KB (opens in a new window)
- mcs.pdf - 22KB (opens in the same window)
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[...] We knew adoption would not be a short process and since we'd already been planning for years a few more wouldn't matter. We have had our problems with the process itself and various "professionals". Nevertheless, in the end, we were appointed to the right Social Worker and this now means that we have a wonderful daughter. [...]
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[...] John is one of the more severely affected of our members, having been virtually housebound since 1999 as well as for long periods before then. John's cheerfulness and sense of humour belie the seriousness of his condition, which is betrayed by, for instance, the weakness of his voice and the many layers of clothing he must wear in order to keep warm. [...]
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- john.pdf - 26KB (opens in a new window)
- john.pdf - 26KB (opens in the same window)
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Rebecca is twenty-five now and has been living with M.E. since her teenage years. She lives in Sheffield with her mum, dad and younger sister who is mostly away at University. As with many other members of our Group, Rebecca's actual diagnosis came some years after the onset of symptoms. [...]
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Extract from the story:
[...] My health steadily declined over a period of about a year, to a point where I was completely bed-bound, too weak to sit up, unable to talk or be spoken to. I couldn't feed myself or attend to even my most basic needs alone. I was in this sorry state for around 10 months before things began to turn around. [...]
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