Severe ME/CFS

 

Around 25% of people with ME/CFS are either homebound (severe) or bedbound (very severe). Because they are unable to leave their homes, people with severe or very severe ME/CFS often struggle to access appropriate healthcare. People with severe or very severe ME/CFS are also rarely included in research studies.

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The information on this page is taken from the article Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. The article was written by a team of healthcare and allied healthcare professionals, who all have experience of supporting patients with severe or very severe ME/CFS. Four of the team also have personal experience as patients or caregivers. 

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If you, or someone you know, has severe or very severe ME/CFS, you can share this information, or the full article, with health professionals to help them provide appropriate care.

People with severe or very severe ME/CFS may
experience...
Steps for providing compassionate care for people with severe or very severe ME/CFS include...
Important diagnostic approaches include...
Mental health
Recommendations for treatment and management include...