What we do

Sheffield ME and Fibromyalgia Group is a small registered charity providing information, support and a point of contact for people of all ages with Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS), fibromyalgia and long covid, their families and their carers, in South Yorkshire and North Derbyshire.

The Group also seeks to raise general awareness of ME/CFS and fibromyalgia, and to educate the general public through the promotion and dissemination of knowledge about these illnesses. They are chronic, debilitating illnesses, which can last for many years, with no known cure.

Below are a list of the services we offer. To have access to all of these services, you must become a member.

Membership costs a single payment of £12 for the year. This can be purchased from our website here, either for one year or recurring yearly. If you encounter any difficulty purchasing your membership online, please contact us at info@sheffieldmegroup.co.uk.

Once paid you will have full access to all our services and events!

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INFORMATION

Phone our office on 0114 2536700 / 07753 948186 or email us at info@sheffieldmegroup.co.uk for information about the group, ME, fibromyalgia and what we do in South Yorkshire and North Derbyshire.

We also send out e-news blasts throughout the year updating you on the biggest upcoming events. Sign up here to receive our e-news.

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BENEFITS ADVICE & SOCIAL CARE ADVOCACY

Our team of highly experienced specialised advisers are there to help our members receive all the support they are entitled to from the government and local council. From disability benefits to blue badges, council tax support, aids and adaptations and more, they are ready to help. Get in touch on benefits@sheffieldmegroup.co.uk

QUARTERLY NEWSLETTER

To keep members up to date with everything related to the Sheffield ME and Fibromyalgia Group, we produce our own quarterly newsletter (soft and hard copies). This contains key dates for upcoming events, news from around the world about ME, fibro and long covid, updates on everything the group has been doing, content and arts produced by our members and more. We encourage our members to send us any magazine material that they find relevant to magazine@sheffieldmegroup.co.uk.

PEER SUPPORT

We provide platforms to encourage peer support within our community of members. Our open Community Facebook group has over 1,000 participants and another private group enables mutual support for members only (if you are a member, please contact info@sheffieldmegroup.co.uk to be added to this group).

We have recently launched our members-only online forum which enables members to share information, advice and mutual support around different topics such as nutrition, pacing and coping with the conditions in general.

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TALKS FROM EXPERTS

Our Group hosts national and international speakers to ensure the latest science is available and accessible to members and professionals. All talks are live-streamed on Zoom and on our Facebook page, so participants can watch from home and ask questions to our guest. The talks are recorded and available for a later watch on our website and our YouTube channel.

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ANNUAL CONFERENCE

Each Autumn we hold our annual conference with a prestigious key note speaker. We also supply a free buffet for members. Past speakers have included Dr Charles Shepherd and David Tuller, DrPH.

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ACTIVITIES AND EVENTS

We put on a range of free social and wellbeing activities for our members. These have included arts and craft sessions, mindfulness, seated tai chi, warm water swimming, quizzes and more. During the lockdown, these activities have been moved online via Zoom. Check out our current and upcoming activities.

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WEEKLY DROP-INS

Along with a team of volunteers we run weekly drop ins at pubs and coffee shops near you. This is you chance to meet up with other people with ME, fibro and long covid, chat with people who understand what you're going through without questioning you, and also just have a good time.

In-person drop-ins have been replaced by online socials during the time of the lockdown.

CHRISTMAS SOCIAL

Join us at our yearly Christmas social to meet other people affected by ME and fibromyalgia, laugh amongst friends, enjoy a free buffet and play some Christmas games.

During the lockdown, the social has been replaced by a series of members-only online activities and gathering.

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ANNUAL GENERAL MEETING

In May or June every year we hold our AGM. As well as a keynote speaker with expertise on either ME or fibromyalgia, this is when we elect our trustees and give an update on the past years goings on. As always, a free buffet for members will be supplied, and time for a natter and catch up

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OUTREACH

Throughout the year we run outreach stalls at events and places across South Yorkshire. Through this we aim to raise awareness of ME and fibromyalgia, connect with more people with these diseases as well as their families and friends, and network with other organisations to increase the profile and understanding of these diseases in the area.