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ME/CFS and Fibromyalgia Awareness Week

Last week was ME/CFS and Fibromyalgia Awareness Week; an opportunity to raise awareness of the illness and call for action.

We hosted a wonderful picnic in the Sheffield Peace Gardens - it was lovely to see so many of you there and to meet new members. We were particularly lucky with the weather!

At the Royal Hallamshire Hospital, we had an information stall and spoke to many healthcare professionals and members of the public about the conditions. We signposted the healthcare professionals to our new website page with resources especially aimed at them, with info on care and treatment, further training and research.

And on social media, we shared information and campaigns from other charities and projects to help amplify their voices during the week.

We wanted to say thank you to everyone who took part, in whatever way, during the week. We know it takes a huge amount of energy, focus and persistence to share your experience or advocate for others. Many of the voices we heard during the week either have the conditions themselves or care for loved ones who do.

We see you. We hear you. And we thank you.

But we are also very aware that the realities of these conditions mean that many cannot take part, so we understand the importance of advocating on your behalf.

Our work doesn’t stop just because the week is over. Together we can raise our voices, be heard and call for action.

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