Updated: Oct 13, 2022
If you have been diagnosed with ME/CFS and are aged 16+, you can sign up to the DecodeME study here: https://www.decodeme.org.uk/portal/
Thursday 6th October
2.00pm Guest Speaker: Prof Chris Ponting, DecodeME
On Thursday 6th October, at 2pm, live on Zoom and Facebook, we are delighted to have a highly prestigious and very topical guest speaker: Professor Chris Ponting, head of the DecodeME project.
Professor Chris Ponting is Chair of Medical Bioinformatics at the University of Edinburgh and group leader in the MRC Human Genetics Unit.
DecodeME is the world’s largest study into ME/CFS, aiming to see whether the disease is partly genetic and, if so, help pinpoint what causes it. The study should help us understand the disease and ultimately find treatments. The aim is to get 25,000 DNA (saliva) samples from people with ME, and even more people to take the questionnaire. Both are done from your home. To get involved go to https://www.decodeme.org.uk/#get-involved-form
3.30pm AGM of Sheffield ME and Fibromyalgia Group
Chris Ponting’s talk will be followed by a short break and then we will host our Annual General Meeting. We will present the Annual Report and Accounts, run through the year’s highlights and elect a Board of Trustees.
Would you like to be a Trustee?
Trustees are unpaid volunteers who together oversee the running, strategy and business planning of the Group, which is a registered charity.
The Board is very friendly. We welcome all members to become trustees, but we particularly need people who bring a knowledge and experience of working in the charity sector. The Board meets once a month on Zoom, and some other business is carried out by email and WhatsApp.
If you’re interested in finding out more, please email email@example.com to contact Carolyn, our Chair, and she'll get back to you. You'll be made very welcome.