Updated: Mar 15, 2020
We wanted to update you with two things.
Firstly, Dr David Tuller will be presenting his talk via video link from the US – he was due to fly in, but sadly had to make the decision that flying was not a sensible option due to the risks associated with coronavirus and the potential of not being able to return to the US if quarantine restrictions were imposed.
Do not attend in person, but join us online as David will be, or watch as we also livestream to our Facebook page.
Full details for joining in from your home, with optional video and/or audio so that you can take part in the Q&A, are below:
Topic: Medically Unexplained Symptoms: Shaky Evidence, Shaky Practice With Dr David Tuller
Time: Monday 16th March 2020. 02:30pm London GMT. (7:30am PDT. 10:30am ET)
Join Zoom Meeting:
Dial in using any phone (standard charges will apply):
+44 203 481 5240 UK (London)
You will then be asked to dial in the Meeting ID: 600 588 922
For other countries, find your local number here: https://zoom.us/u/amfBTMmh5
Remember that you can watch the livestream on our facebook page too, and we will upload a recording of the talk to YouTube afterwards as well.
We are carefully monitoring the situation around coronavirus and if it gets significantly worse in the days before the event we may need to move the entire event online, so please check back here or on our website before setting off.
Edit: Please do not come in person. Join us online or by phone. Read full update here:
Covid-19 is becoming a major concern and we do not know the effect it will have on people with ME or fibromyalgia; we do however know that accessing healthcare is often very challenging for those with these illnesses, therefore we must do everything to prevent the spread of Covid-19 in our communities and beyond. The situation has escalated significantly over the weekend and many institutions are cancelling or postponing events, we feel it is only fair and safe to move this event online. Thank you for understanding and we look forward to you joining the talk online or via your phone. If you have any questions please feel free to get in touch on email@example.com
Secondly, we wanted to share with you the advice about coronavirus published by the ME Association on their website, updated weekly. You can find more detail here: https://www.meassociation.org.uk/2020/03/me-association-guidance-coronavirus-covid-19-update-09-march-2020/
· Viral infections are a very common factor in causing symptom exacerbation and relapse of ME/CFS – sometimes severe and prolonged. So, everyone with ME/CFS should be taking simple self-help measures that reduce the risk of both spreading and catching infections from other people. These are listed further down.
· At the moment, the risk of someone with ME/CFS coming into contact with someone who has coronavirus is still extremely low.
· As ME/CFS involves immune system activation, rather than immune system deficiency, there is a theoretical reason to indicate that having ME/CFS may not place someone at increased risk of developing a severe infection. But how people with ME/CFS will react to the actual virus remains uncertain, so it is best to err on the side of caution.
· For people with ME/CFS who are not housebound, ways of reducing your social mobility now need to be considered.
· Most of those who develop a more serious or fatal infection are elderly (i.e. over the age of 70) and are less able to mount a good immune defence or have a long-term health condition – espe